{"id":806,"date":"2015-10-22T13:32:34","date_gmt":"2015-10-22T13:32:34","guid":{"rendered":"https:\/\/www.cgs-cls.cz\/?page_id=806"},"modified":"2021-07-20T22:41:56","modified_gmt":"2021-07-20T20:41:56","slug":"pacientske-organizace","status":"publish","type":"page","link":"https:\/\/www.cgs-cls.cz\/pacientske-organizace\/","title":{"rendered":"Pacientsk\u00e9 organizace"},"content":{"rendered":"

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Pacienti IBD z.s.<\/a><\/p>\n

Pacientsk\u00e1 organizace Pacienti z.s. vznikla se z\u00e1m\u011brem informovat, pom\u00e1hat a sdru\u017eovat pacienty s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty jako je Crohnova choroba\u00a0nebo ulcer\u00f3zn\u00ed kolitida.<\/p>\n

Zakl\u00e1daj\u00edc\u00ed \u010dleny pacientsk\u00e9 organizace motivuje jejich osobn\u00ed zku\u0161enost s onemocn\u011bn\u00edmi a cht\u011bj\u00ed umo\u017enit ostatn\u00edm zainteresovan\u00fdm vytvo\u0159it re\u00e1ln\u00fd i virtu\u00e1ln\u00ed prostor pro setk\u00e1v\u00e1n\u00ed, v\u00fdm\u011bnu informac\u00ed a p\u0159\u00e1telskou podporu. Virtu\u00e1ln\u00edm prostorem je pr\u00e1v\u011b web crohn.cz a facebookov\u00e1 str\u00e1nka spolku.<\/p>\n

V\u00edce informac\u00ed o organizace naleznete na webov\u00fdch str\u00e1nk\u00e1ch: www.crohn.cz<\/a><\/p>\n

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\"ILCO<\/a><\/p>\n

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\u010cesk\u00e9 ILCO, z.s. – dobrovoln\u00e9 sdru\u017een\u00ed stomik\u016f<\/a><\/strong><\/p>\n

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\u010cesk\u00e9 ILCO bylo zalo\u017eeno v roce 1992 a od t\u00e9 doby h\u00e1j\u00ed z\u00e1jmy v\u0161ech stomik\u016f, jedn\u00e1 jejich jm\u00e9nem s ministerstvy, zdravotn\u00edmi poji\u0161\u0165ovnami, distributory stomick\u00fdch pom\u016fcek a dal\u0161\u00edmi zainteresovan\u00fdmi org\u00e1ny, vyjad\u0159uje se k legislativ\u011b, kter\u00e1 se t\u00fdk\u00e1 stomik\u016f a sna\u017e\u00ed se napl\u0148ovat sv\u00e9 posl\u00e1n\u00ed, tedy zlep\u0161ovat stomik\u016fm \u017eivot a pom\u00e1hat jim v n\u00e1vratu do norm\u00e1ln\u00edho \u017eivota.<\/p>\n

V\u00edce informac\u00ed na webov\u00fdch str\u00e1nk\u00e1ch: www.ilco.cz<\/a><\/p>\n

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\"Celiak<\/a><\/p>\n

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Spole\u010dnost pro bezlepkovou dietu z.s.<\/a><\/strong><\/p>\n

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Spole\u010dnost pro bezlepkovou dietu z.s. se zam\u011b\u0159uje na pomoc lidem, kte\u0159\u00ed jsou kv\u016fli nesn\u00e1\u0161enlivosti lepku odk\u00e1z\u00e1ni na bezlepkovou dietu. Bezlepkov\u00e1 dieta je celo\u017eivotn\u00edm \u00fad\u011blem p\u0159i nemocech jako celiakie \u010di Duhringova dermatitida.<\/p>\n

Webov\u00e9 str\u00e1nky celiak.cz<\/a> a facebookov\u00e9 profily „Spole\u010dnost pro bezlepkovou dietu“ a „Mlad\u00ed celiaci“ funguj\u00ed jako komunika\u010dn\u00ed platforma, kde pacienti najdou nejen v za\u010d\u00e1tc\u00edch l\u00e9\u010dby podporu, d\u016fle\u017eit\u00e9 informace o nemoci, o principech bezlepkov\u00e9 diety, pozv\u00e1nky na spole\u010dnost\u00ed po\u0159\u00e1dan\u00e9 akce a jin\u00e9. \u00a0Str\u00e1nky jsou pravideln\u011b aktualizov\u00e1ny, a n\u00e1v\u0161t\u011bvn\u00edci tak na nich najdou spolehliv\u00e9 a p\u0159esn\u00e9 informace.
\nZ\u00e1rove\u0148 spole\u010dnost vyd\u00e1v\u00e1 eduka\u010dn\u00ed materi\u00e1ly (nap\u0159. bro\u017eura „Bezlepkov\u00e1 dieta – Jde to i bez lepku“).<\/p>\n

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V\u00edce informac\u00ed najdete na www.celiak.cz<\/a> a zmi\u0148ovan\u00fdch facebookov\u00fdch profilech.<\/p>\n

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Sdru\u017een\u00ed celiak\u016f \u010cR, z. s.<\/p>\n

Jsme neziskov\u00e1 pacientsk\u00e1 organizace s\u00a0celost\u00e1tn\u00ed p\u016fsobnost\u00ed, kter\u00e1 byla zalo\u017eena v\u00a0roce 1998.<\/p>\n

Pom\u00e1h\u00e1me v\u0161em, kte\u0159\u00ed mus\u00ed ze zdravotn\u00edch d\u016fvod\u016f dodr\u017eovat bezlepkovou dietu. Na l\u00e9ka\u0159sk\u00e9m pracovi\u0161ti zdarma provozujeme Poradnu pro d\u011btsk\u00e9 i dosp\u011bl\u00e9 celiaky z cel\u00e9 \u010cR. Od sv\u00e9ho vzniku po\u0159\u00e1d\u00e1me Celost\u00e1tn\u00ed setk\u00e1n\u00ed celiak\u016f s odborn\u00fdm programem a prezentac\u00ed v\u00fdznamn\u00fdch v\u00fdrobc\u016f a dovozc\u016f bezlepkov\u00fdch potravin. Jsme aktivn\u00edmi \u010dleny Asociace evropsk\u00fdch organizac\u00ed celiak\u016f a pro\u00a0\u010cR spravujeme logo p\u0159e\u0161krtnut\u00e9ho klasu. Po\u0159\u00e1d\u00e1me kurzy bezlepkov\u00e9ho pe\u010den\u00ed.<\/p>\n

Vyd\u00e1v\u00e1me Rukov\u011b\u0165 celiaka a \u010dtvrtletn\u00edky Zpravodaj.<\/p>\n

Terapeutick\u00e1 oblast: celiakie, herpetiformn\u00ed dermatitida typu Duhring, alergie na lepek, glutenov\u00e1 senzitivita<\/p>\n

S\u00eddlo: Ke Karlovu 455\/2, 120 00\u00a0 Praha 2<\/p>\n

Adresa pro p\u00edsemn\u00fd styk: P. O. Box 20, 252 63\u00a0 Roztoky<\/p>\n

Web: www.celiaci.cz<\/a><\/p>\n

e-mail: info@celiaci.cz<\/a><\/p>\n

FB: https:\/\/www.facebook.com\/SdruzeniCeliakuCR\/<\/a><\/p>\n

Tel.: +420\u00a0602\u00a0273\u00a0173<\/p>\n","protected":false},"excerpt":{"rendered":"

      Pacienti IBD z.s. Pacientsk\u00e1 organizace Pacienti z.s. vznikla se z\u00e1m\u011brem informovat, pom\u00e1hat a sdru\u017eovat pacienty s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty jako je Crohnova choroba\u00a0nebo ulcer\u00f3zn\u00ed kolitida. Zakl\u00e1daj\u00edc\u00ed \u010dleny pacientsk\u00e9 organizace motivuje jejich osobn\u00ed zku\u0161enost s onemocn\u011bn\u00edmi a cht\u011bj\u00ed umo\u017enit ostatn\u00edm zainteresovan\u00fdm vytvo\u0159it re\u00e1ln\u00fd i virtu\u00e1ln\u00ed prostor pro setk\u00e1v\u00e1n\u00ed, v\u00fdm\u011bnu informac\u00ed a p\u0159\u00e1telskou podporu. Virtu\u00e1ln\u00edm prostorem […]<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":66,"ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-806","page","type-page","status-publish","hentry"],"acf":[],"lang":"cs","translations":{"cs":806},"pll_sync_post":[],"_links":{"self":[{"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/pages\/806","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/users\/1"}],"version-history":[{"count":11,"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/pages\/806\/revisions"}],"predecessor-version":[{"id":6787,"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/pages\/806\/revisions\/6787"}],"wp:attachment":[{"href":"https:\/\/www.cgs-cls.cz\/api\/wp\/v2\/media?parent=806"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}